bckr | Haemochromatosis UK seeks new Trustee
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Haemochromatosis UK seeks new Trustee

Haemochromatosis UK seeks new Trustee

Closing Date
28 February 2021
Time Commitment
5-6 days a year

GHaemochromatosis UKenetic haemochromatosis is the UK’s most common inheritable genetic condition, directly affecting over 380,000 people. Genetic haemochromatosis can cause liver disease, cancer, heart disease, chronic fatigue, diabetes, severe joint pain, sexual health issues and neurological issues.

We are seeking additional members of the public to join our Board of Trustees, which oversees our charity’s work. Each Trustee brings their own unique perspective to the table, to inform key decisions that shape the future of our charity.

As a Trustee, you will support the development of the charity’s strategy, provide specialist skills in support of our executive team (when requested) and ensure that governance is of the highest possible standard.

These roles are voluntary, with reasonable travel expenses reimbursed. Trustees receive a full induction and relevant training upon appointment. The Board meets quarterly on weekdays by Zoom and attends an annual planning day at our headquarters in Spalding, Lincolnshire.

Trustees are also expected to attend our annual patient conference and AGM and to develop their trusteeship skills throughout the year. This commitment includes participation in our annual board development/training day. In total, trusteeship requires a time commitment of around five to six days per year. Appointments are for three years in the first instance and travel expenses are reimbursed in line with our charity’s expenses policy.

Haemochromatosis UK is a registered charity and company limited by guarantee and so prospective trustees must be eligible to act as trustee and as a company director.

We are particularly keen to ensure that our trustee board reflects the diverse nature of the communities we support. We encourage applications from everyone regardless of age, disability, gender, ethnicity, religion or sexual orientation.


Please click here for further information.