bckr | CGD Society (immune system condition) seeks new Trustee with legal skills
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CGD Society (immune system condition) seeks new Trustee with legal skills

CGD Society (immune system condition) seeks new Trustee with legal skills

Closing Date
10 December 2021
London / Remote
Time Commitment
Please enquire on application

CGD is a rare, potentially life-limiting, inherited condition of the immune system. It affects around six in a million people and is caused by a faulty bone marrow gene that renders white blood cells unable to fight off infections. As a result, those affected by CGD are susceptible to serious and debilitating illnesses, such as colitis, abscesses, and respiratory problems. In common with many rare diseases, CGD patients endure a poorer quality of life, persistent anxiety about their condition and sadly, for some, a shorter life expectancy.

The charity is led by a Trustee Board of six volunteers the majority of whom are members of families affected by the condition.  We have a three-year strategy to deliver and value the friendliness, openness and diversity of thought that our Board brings to this work.

We have some specific skills gaps we would like to fill which are listed below but in doing so we are also particularly keen to diversify our Board in terms of age, race, gender and religion.

  • Legal (ideally with some charity context) as an essential point of reference
  • Improving our bid writing skills to maximise grant funding
  • Fundraising strategy to help us diversify our income streams
  • Governance secretary (Company secretary) to ensure compliance
  • Information Technology to ensure we remain efficient and up to date
  • Brand development to get the most out of our assets
  • Digital Marketing to help our fundraising and communication
  • Healthcare professional to help our understanding of healthcare delivery in the UK

Experience or knowledge of a rare genetic condition would be advantageous but is not a requirement.

Currently all Trustee Meetings are virtual but we hope to have at least one physical strategy meeting in 2022, probably in central London or the home counties.  Hence applicants can be UK wide but within realistic travelling distance of London.  The role is unpaid but expenses will be reimbursed.

Our small, intimate charity is a great place for new and experienced trustees.  You will join our community and feel their warmth and gratitude for everything that we do. You will quickly make a difference by being part of strategic decision making, influencing and shaping projects to improve the health and wellbeing of our members.  You will also join our network of friendly, like-minded volunteers and you will learn new skills to benefit your professional role as well.

We are a good charity, but we have ambitious plans so with your help we can be even better.  Come and join our team and share our future success.


Please click here for further information.